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Assessing newborn babies – some processes are ‘not fit-for-purpose’ for Black, Asian and ethnic minorities
Kirsty Allen
Hypoxic Ischaemic Encephalopathy (HIE) is a term used to describe brain damage caused by a lack of oxygen (hypoxia) and / or a diminished amount of blood reaching a baby’s brain. HIE can occur during pregnancy, birth or shortly thereafter.
Some causes can include umbilical cord compression, placental abruption, shoulder dystocia (where a baby’s shoulders become stuck during labour), uterine rupture, infection and placental insufficiency. There are three categories of HIE – mild, moderate and severe. The longer the period of oxygen deprivation, the worse the damage can be.
HIE can arise from a delay in recognising fetal distress or a failure to deliver a baby quickly enough once this is recognised. In these circumstances there may be a claim for medical negligence.
Claims can involve a range of practitioners including midwives and obstetricians. Anaesthetists are also often involved if there are allegations that providing anaesthesia for a caesarean section was delayed.
While oxygen deprivation happens most commonly before or during birth, it is also possible for HIE to arise following a birth, for example due to a heart problem.
HIE can develop in a matter of minutes and have devastating lifelong impacts for the newborn baby and its family. Babies can develop other conditions associated with HIE including cerebral palsy, epilepsy, hearing and visual impairments, and respiratory and orthopaedic conditions.
Symptoms of hypoxia prior to or after birth can include an abnormal fetal heart pattern, problems with feeding, and a baby being born blue or floppy. Apgar scores – a test given to all newborns - can provide an indication of hypoxia. Other tests may be undertaken to assess any brain damage such as an MRI scan. It is important that a diagnosis is made quickly so that treatment can be considered and commenced. If there is a failure to diagnose HIE then, again, there may be a claim for clinical negligence.
Those with mild HIE generally recover well but where the condition is moderate or severe, there a greater risk of irreversible damage to the brain. Other organs can also be affected.
One of the most effective treatments for HIE is therapeutic hypothermia, also known as brain cooling. This must be given very shortly after birth (within six hours) to be effective. The therapy involves cooling a baby’s temperature to 33.5 degrees Celsius for 72 hours. Babies need to be monitored carefully during this process as complications can occur, such as with blood pressure control.
Where a baby is diagnosed with HIE as a result of an incident surrounding their birth, then there is likely to be an investigation by the NHS as part of the Early Notification Scheme (ENS). More information about this is available on our ENS page and we offer a free consultation to all families going through this process.
If injuries from HIE were suffered as a result of medical negligence then there may be a claim to recover compensation for the needs of the baby going forward, including care, adaptations to accommodation, specialist equipment, therapies and education. Our medical negligence team at Kingsley Napley are specialists in claims involving HIE and provides a sensitive and supportive service as well as the highest level of legal advice. You can read about some of the Birth Injury cases we have acted in on our case studies page.
Where a baby has died, a solicitor may be able to assist with representation at an inquest.
Please contact our team on 020 7814 1200 for a free no obligation discussion if you have any concerns about medical treatment related to a birth.
Peeps HIE is a charity providing support to those affected by HIE. More information can be found on their website.
If you have any questions or concerns about the issues raised in this blog, please contact any member of the Medical Negligence and Personal Injury team.
Arriving hot on the heels of Donna Ockenden's report highlighting the scale of problems at Nottingham University Hospitals NHS Trust, the final report from the national investigation into maternity and neonatal care led by Baroness Amos is bleak indeed. The review investigated 12 NHS Trusts and considered the experiences of thousands of women, their families, and hospital staff. The findings are stark, with Baroness Amos stating "we cannot continue like this" …"there is absolutely no justification for the tragic cases of unsafe care and avoidable harm we continue to see in England." Having acted for children and mothers injured as a result of poor care for over 30 years, I find the lack of progress shocking. I would not have believed at the start of my career that maternity services would be in the state that they are now.
After four years, the much-awaited government-commissioned independent review of maternity services at Nottingham University Hospitals NHS Trust has been completed and published. Led by Donna Ockenden, the review was prompted by significant concerns about the quality and safety of maternity services at the Trust.
I am extremely pleased to see the continuing roll-out in the UK of Martha’s Rule (see our previous articles on this topic here, here and here) and that a recent NHS England report demonstrates that the rule is having a very positive impact. Patient empowerment and clear communication, the embodiment of this rule, are critical components in avoiding medical accidents and poor outcomes. I am particularly keen to see the implementation of this rule being extended to maternity and neonatal settings, an area where, as a specialist birth injury lawyer, I see avoidable harm all too often.
This year, World Cerebral Palsy Day falls on 6 October with a theme of ‘#Unique and United’. The Kingsley Napley Medical Negligence and Personal Injury team strongly support the vision of this global movement - which is about recognition of the 50 million people who are living with cerebral palsy and striving for a more accessible and inclusive world.
Legal claims for hypoxic brain injuries during birth – caused by a disruption in oxygen supply - remain prevalent. These injuries can have a devastating impact and lead to lifelong conditions including Cerebral Palsy. Indeed, claims relating to brain injuries sustained during birth account for a significant percentage of the total value of clinical negligence damages paid out each year. This is because the average amount of damages for such cases is very high, not infrequently running to tens of millions of pounds, with some impacted children having lifelong needs for care, treatment, equipment and housing. Nonetheless, claims for clinical negligence in this area can be particularly thorny to prove. In this article I consider when the doctrine of ‘material contribution’ – said by the Court of Appeal to have been ‘bedevilled by apparent inconsistency’ – may apply to hypoxic birth injury cases where the window for avoiding injury can be short. Does every minute really count?
The Government has this week confirmed the names of 14 Hospital Trusts that will be part of a rapid national investigation of maternity and newborn baby care across England that was announced by Wes Streeting back in June. (See my colleague Sharon Burkill’s blog on that announcement here). I am carefully watching the developments with regard to this investigation, knowing full well from my clients and their stories how desperately improvements to our maternity services are needed.
We were delighted to take part in a 15km walk on Saturday 6 September for the Dame Vera Lynn Children’s Charity (DVLCC) to raise funds for this excellent cause.
The Health Services Safety Investigations Body (HSSIB) has shared insights into safety concerns raised by women and families and other stakeholders about maternity and neonatal care within NHS England, highlighting once again the need for meaningful change.
Each year NHS Resolution, the body dealing with legal claims against the NHS, produces a report which provides insights into what is happening with clinical negligence claims. This year the picture is very mixed. It shows that claims for clinical negligence are on the rise although more cases are being settled without the need for Court proceedings. Nonetheless, despite Government efforts, high levels of maternity cases and associated costs persist.
Concerns over NHS maternity care are very sadly seldom out of the news. As a lawyer who has specialised in birth injury claims over many years, it has been all too clear to me for a long time, that far too many women and babies, fail to receive anywhere close to adequate maternity care leading in some instances to devastating outcomes.
New data from the UK Health Security Agency (UKHSA) shows a significant rise in cases of invasive meningococcal disease (IMD) across England during 2022/23 compared with the previous year. Meningococcal disease is the collective name given to disease caused by Neisseria meningitidis. Infection with this bacteria can result in either meningitis or septicaemia (commonly known as blood poisoning) or both.
Immediate action to improve maternity care in the UK is undoubtedly needed and this week the Government has announced the launch of a pilot programme to help reduce avoidable brain injuries in childbirth.
Maternity care in England is coming under yet further fire in the form of a report from the Care Quality Commission (CQC). The report reveals that of the 131 maternity units inspected during the last two years almost half were rated inadequate or requiring improvement.
Concerns about maternity services in the UK are never far from the headlines and the urgent need for improvement is widely acknowledged. This month sees a new Care Quality Commission (CQC) report rating the safety of maternity services inadequate within Bedford Hospitals NHS Foundation Trust and highlighting concerns surrounding midwife shortages.
Twelve vital recommendations are at the core of a new report by the All-Party Parliamentary Group on Birth Trauma . Of these, three particularly stand out for me, as a specialist birth injury solicitor, although they may not at first sight seem the most urgent to implement. In no particular order, these are:
- Providing support and updated information for fathers;
- Funding for interpreters with expertise in maternity; and
- Extending the time limit for bringing a legal claim relating to childbirth.
I have long campaigned for the duty of candour, believing it is the only way to truly have an open dialogue that allows everyone to understand where something has gone wrong, and for systems to be put in place to prevent the same thing happening again.
Sodium valproate (brand names include Epilim and Depakote) is a drug to treat epilepsy, bipolar disorder and migraines which, if taken in pregnancy, is associated with a significant risk of birth defects and developmental disorders often known as Fetal Valproate Syndrome (FVS).
As the evidence of failing maternity services appears to be mounting, the Government is now pledging to prioritise improvements to maternity care as part of it’s womens health strategy for 2024.
As a lawyer specialising in claims for babies who suffer severe injuries at birth and in the neonatal period, I am extremely saddened that cases are still coming to light where babies are not given vitamin K following birth. Errors such as those highlighted in the recent inquest into the death of seven-week-old William Moris-Patto - where his medical record erroneously stated he had been given the supplement when in fact it had not been administered - are extremely concerning.
‘One of the most devastating complications that can result from medical mismanagement during labour and delivery is hypoxic ischaemic encephalopathy’ (K McCombe and D G Bogod).
Hypoxic Ischaemic Encephalopathy (HIE) is a term used to describe brain damage caused by a lack of oxygen (hypoxia) and / or a diminished amount of blood reaching a baby’s brain. HIE can occur during pregnancy, birth or shortly thereafter.
or call 020 7814 1200
Kirsty Allen
James Bell
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